How to Advocate for People with Disability and Dwarfism
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“Speak up for those who cannot speak for themselves, for the rights of all who are destitute. Speak up and judge fairly; defend the rights of the poor and needy.”
Proverbs 31:8–9
What is an advocate?
The dictionary defines an advocate as, “a person who pleads for or on behalf of another; intercessor.”
As a dwarf who stands three feet, four inches tall, Angela Muir Van Etten has spent her life advocating for herself and others. A dual citizen of the United States and New Zealand, she is qualified to practice law in both countries. Angela joins the podcast to talk about her experience as an advocate, seeking to change discriminatory treatment against people with dwarfism and other disabilities.
Angela has her own way of expressing the heart of advocacy.
She says, “Advocacy makes change possible when people call out what is wrong, care enough to stand up for what is right, commit to the cause for as long as it takes, and have confidence in God’s power to change hearts.”
What are the keys to effective advocacy?
Angela shared that her advocacy often involves helping to mold laws that allow people with disabilities to function just like other people can. This includes banning outright discrimination and creating accessible environments: ramps, lowered water fountains, accessible ATMs, etc.
Of course advocacy has many facets beyond shaping laws.
After decades serving as an advocate, Angela has identified what it takes to advocate effectively and successfully:
- Personal commitment: you have to care.
- Willingness to act: you must be ready to take action, as opposed just believing that “somebody ought to do something.”
- Competence: know what you’re doing—learn the regulations, rules, and processes that pertain to the change you seek.
- Awareness: find out who has the authority to make the change(s) you seek.
- Connectedness: learn to network and collaborate with others who care about your cause.
- Solidarity with constituents: find others who share your condition or concern; get them involved.
- A strong support group: find friends, family, neighbors, church community, etc.—people who will stand with you.
- Credible communication: tell the truth; be clear and accurate; do not exaggerate.
- Knowledge of the opposition: find out who disagrees with you and why.
But even the most seasoned advocates face opposition and discouragement. Angela has experienced disheartening and seemingly insurmountable obstacles in her advocacy many times.
When things look hopeless, she has learned to trust that God is ultimately in control.
The outcomes are in his hands—from hearts that need softening to laws that need rewriting.
“I will give you a new heart and put a new spirit in you; I will remove from you your heart of stone and give you a heart of flesh.”
Ezekiel 36:26
Where can you find help to advocate for yourself or a loved one?
If you find yourself having to advocate for yourself or a loved one, you may face obstacles and frustration. Angela urges you to find support, learn as much as you can, and remember that you don’t have to go it alone. In the U.S. many resources can also help you in your advocacy journey. For example:
- Find your state’s Protection & Advocacy resources
- Learn more about Centers for Independent Living
- Get resources and confidential assistance through 211
Whether you live with a disability, serve as an advocate, or need advocacy help, Angela encourages you not to give up—remember that God can do things that seem impossible. And he hears you when you call to him.
“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”
John 16:33
Hear More of Angela’s Story
Listen as Angela shares about growing up with dwarfism and how she became a voice for people with disability.
